Autism Testing Update and Old But New News

Because of Hunter's hospital stay last week, the place we are taking Hunter for his Behavioral Evaluation/Autism testing didn't want us to take him in.  We had to reschedule the appointment for April 1st.  The more I think about it, the more I really truly want to know.  At first, I was in shock.  Now, I am wanting to know:

1) Does Hunter lie somewhere in the very LARGE Autism spectrum?

2) What can I do to help Hunter at home?

3)What programs/support groups are available to help me understand.

So, here's to April 1st.  If we don't get a diagnosis of Autism, hopefully this is something he will out grow.

Old news but new news....As you already know, Paizlei has been sick and has had everything under the sun since Christmas.  The one health issue that has been consistent since she turned one in December, Paizlei cannot go #2 on her own.  We have been giving her a daily regimen of:

17 grams of Miralax

1 teaspoon Colace 2X/per

2 Glycerin suppositories 2X/day

Prune juice in the morning

Apple juice at noon

Apple juice at dinner

Massaging her little tummy

Bicycles with her feet

NOTHING WORKS!!!!!

We are going on 2 weeks now of no bowel movement.  One of the many times I have had her in the ER the last couple of months, one of the ER docs said it looked like Paizlei had an obstruction in her colon.  He showed the x-ray to our doctor and he admitted Paizlei.  Ever since that one ER doc mentioning the obstruction, nothing has ever been mentioned again.  Another ER doc said he thought she had a congenital defect with her colon or her bowels, probably from being early.  But again, that was the only time that was brought up.

This last week has been horrible for her.  Not only has she not felt good, she has also been dealing with wanting to go #2 and struggling so incredibly bad.  You know the old saying "stiffer than a board"?  That is putting it very politely for what Paizlei does.   Her whole body stiffens and whatever is right there for her to hold on to for "pushing" support, watch out.  And then she cries and cries and cries until she is done pushing.  The sad thing, usually there is nothing in her diaper

I called our doctor's office and told them exactly what I was doing, when I was doing it.  I told them I have been doing EVERYTHING the doctor told me to do and NOTHING is working.  I asked them if they could PLEASE try to find a doctor up at Primary's that can help her.  Hopefully when I take Hunter into the doctor tomorrow, they will have a referral and an appointment ready for us.  In the meantime, I have requested EVERYTHING from Paizlei's NICU file, including all the x-rays, ultrasounds and MRI's that she had while she was in the NICU.  Maybe, just maybe, there is something in there that will tell us WHY she is having such a hard time.